Ralph Smith
Forum Replies Created
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Xy Mia has challenges with Eyesight that come and go. Mostly goes, smh. She tried to describe is like when Google blurs someones face on the internet for privacy reasons. But everything looks like that, not just the face. Remember, the eyes themselves are not affected by FA. It’s the nerve thinning. So it seems that the messaging to the brain gets worse and worse. Until one day, that connections is broken? Does one eye go before the other? Maybe Egan know how it was with his brother and can tell us.
Thanks
Ralph -
Christina, what seems to be the “appropriate medicine” that help you? Thanks
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Xy Mia cannot transfer on her own, but riding rollercoasters is her passion. Her mom and I have taken a few measures that help in making her experience more enjoyable. First we take care of her feet. Her feet are very curved and super sensitive to touch. We found boots several sizes too big that fit nicely so if we bump her during transfer, she can handle it a bit better. We sometimes carry a second pair just in case. I cannot wear sandals or flip flops to the parks. I wear hiking shoes so I can be very steady on my feet during transfers. If the coaster car is low, her mom gets in the car and I lower her down with mom assisting. The best coasters for her are the ones that the chair is a bit higher and has the pull down Braces that hug your shoulders and waist at the same time. I never worry in those as her wobbly head is well protected as well. In the coasters that just have a waist strap or bar, I ride with her and always have an arm around her. I have only found a couple that she cannot ride. For instance, Space Mountain in Disney. Not much protection and she is isolated where I cannot reach to brace her. Her favorite is Rockin Roller Coaster in Disney World. And she loves tower of terror. Keep in mind that Xy Mia cannot hold herself up anymore. But that does not stop her. She was unable to walk by age 10, but I don’t think she will ever stop riding Park Rides.