Malcolm Long replied to the topic DMF- Dimethyl Fumarate in the forum FA Research, Scientific News, & Clinical Trials 7 months, 3 weeks ago
DMF is currently listed on the FARA research pipeline spreadsheet
as under test, along with other items.
Great to hear it has had a positive result for others but IMO frustrating that…[Read more]
Malcolm Long replied to the topic Reata Pharmaceuticals – Omaveloxolone Update #5 in the forum FA Research, Scientific News, & Clinical Trials 10 months, 2 weeks ago
Having seen how the selection was done for participants in the trial, it required someone of paralympic standard recumbant cycling ability with corresponding breathing and endurance. Whilst being hopeful and grateful for any company pursuing a treatment I do wonder how effective it will be for the vast majority that couldn’t achieve the lofty…[Read more]
Malcolm Long replied to the topic Moxie Study in the forum FA Research, Scientific News, & Clinical Trials 3 years, 1 month ago
My daughter failed to get onto the trial as she couldn’t pedal a recumbent bike to exhaustion. My concern is the trial is being based on the equivalent of ‘paralympic’ performance and may be skewing results. Hopefully not and the reports and good effects will apply to everyone whatever their FA status.
Malcolm Long replied to the topic Opinions on Etravirine? in the forum FA Research, Scientific News, & Clinical Trials 3 years, 9 months ago
Just registered today and have been following progress on etravirine as well as Diazoxide. Both these have been picked up for research:
• Diazoxide (Carlo Marobbio, Bari, Italy) – mitochondrial K channel activator that
increases frataxin expression
• Dimethyl fumarate (DMF) and Resveratrol (Gino Cortopassi, UC Davis) – to
increase frata…[Read more]
Malcolm Long became a registered member 3 years, 9 months ago
Hey Malcolm! Thank you for signing up and welcome to the FA forum!