Base

Name

Malcolm Long
Nickname

malcolm-long
Year of Birth

1952
Gender

Male
Location

Cheshire UK
Relationship

Family
Short Bio

My daughter was diagnosed with FA at 15 in 2015 with the typical GAA repeat but a point mutation on the other half of her DNA.  We’re helping research in the UK re. biomarkers and any trials.
How did you hear about us?

FA Website
How long have you or the person that you are caring for had FA?

4 years
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