Friedreich’s Ataxia News Forums Forums Research, Science, and Trials Rare Barometer’ Program Helps Eurordis Shape EU Rare Disease Policy

  • Rare Barometer’ Program Helps Eurordis Shape EU Rare Disease Policy

    Posted by FA Forums Moderator on July 23, 2019 at 11:36 am

    Eurordis, the European alliance of rare disease organizations, uses a 10,000-member patient and caregiver database to conduct surveys on public policy. Read more about it here.

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