• Parents and Caregivers

  “Not Alone in the Dark”

  Posted by Katie Griffith on September 2, 2021 at 10:00 am

  FA News recently shared the news that the National Alliance for Caregiving along with Global Genes recently released an online guidebook for caregivers of children with rare diseases. It has a wealth of information, and I’m so excited to have this resource! Check out the article and leave your feedback below.

  Katie Griffith replied 2 years, 7 months ago 0 Member · 0 Replies

  • caregivers
  • Friedreich's Ataxia
  • guidebook
  • rare disease community
• 0 Replies

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