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Hearing Friedreich’s Ataxia for the first time can be an overwhelming time experiencing the emotions of a new diagnosis and trying to determine next steps. It is important to recognize that you are not alone. The FA Community is an active and supportive one.
FARA (Friedreich’s Ataxia Research Alliance) has created this packet as a resource and guide for newly diagnosed families. It is also a good tool for any existing patients:
https://www.curefa.org/pdf/living-with/NewlyDiagnosedPacket.pdf
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