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      Because Friedreich’s Ataxia is such a rare disease, it is important to find a designated team of healthcare professionals to monitor your FA diagnosis. This group can include a neurologist, cardiologist, orthopedist and endocrinologist. The group may also include genetic counselor, physical therapist and occupational therapist.

      To address my FA symptoms, once a year, I visit my neurologist, cardiologist and keep up with physical therapy in the interim.

      How often do you see your FA specialists? Why do you think it’s important for these routine visits?

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