Friedreich’s Ataxia News Forums Forums Research, Science, and Trials Etravirine Added to FARA’s Research Pipeline

  • jonathan

    Member
    June 5, 2019 at 10:16 am

    It’s a good choice by FARA.

  • rose

    Member
    June 17, 2019 at 12:45 pm

    hey! this are really good news! my boyfriend has FA, we are been dating for almost 1 year, we don’t talk much about FA but i think this is awesome, i talked to him about etravirine, he does not seem to be very excited about it but i can understand why. anyways i will keep reading, researching and learning, keep me posted!

    • matt-lafleur

      Member
      June 17, 2019 at 1:21 pm

      Thanks so much for posting. I understand your boyfriend’s hesitation. It’s hard to have hope in any untested medication. Let your boyfriend know that if he ever wants to, he can join the forums too or shoot me an email anytime.

  • gunnhild

    Member
    June 18, 2019 at 11:54 am

    Hi 🙂

    We all see life in a different way, but is there someone who really don’t prefer to have hope in something (for as long as it lasts) rater than no hope at all? I’m just curious because the years that I had no hope felt like hell to me.

    • matt-lafleur

      Member
      June 18, 2019 at 12:07 pm

      Oh my friend, you’ve identified a constant struggle for me: how to treat this dangerous thing called hope. I wish I knew!

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