Friedreich’s Ataxia News Forums Forums Parents and Caregivers Encouraging FA parents and caregivers to reach out

  • Encouraging FA parents and caregivers to reach out

    Posted by Frankie Perazzola on May 16, 2019 at 11:44 am

    Hi everyone!

    @matthew-lafleur and I want to reassure the parents and caregivers to feel safe here on the FA forum. We understand the importance of remaining anonymous when discussing your child or client. Since the forum is so public, it can be tricky to discuss personal matters that others can easily find. We just wanted to let you know there are a few things you can do to stay anonymous and participate in this forum without feeling “invasive.”

    Parents and caregivers are an essential part of the FA community and it’s important to us that you guys have a space to connect without worrying about judgement or your child feeling like your sharing too much about them.

    • When you register, use your email but put a different name to remain anonymous on the forum
    • When posting a topic or replying to a comment, don’t use names
    • Use alter egos, fake names, nicknames, whatever! Just make it so people cant trace it to you and your family

    What kind of other things deter you from participating in this forum? Is there a way we can further help. Please feel free to send a private message to @matthew-lafleuror I if you don’t want to respond here!

    Frankie Perazzola replied 5 years ago 1 Member · 0 Replies
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