Friedreich’s Ataxia News Forums Forums Living With FA Helpful Activities for FAers

  • Helpful Activities for FAers

    Posted by Matthew Lafleur on August 7, 2019 at 8:44 am

    Let’s make a list of activities we do (exercise or not) that we think helps maintain our FA progression. Maybe we can give others an idea.

    I have 2 to share:

    1.  Riding my two recumbent trike. One has foot pedals and one is a hand-cycle. I rotate which one I ride for about an hour, 5-7 days per week. I am not fast, and I don’t go far, but it’s nice to give my arms and legs an exercise they normally don’t get.
    2. One of my jobs at work is to manually record savings in a big book. My handwriting is awful, but it’s good to try to legibly write and add numbers in graph paper once a week!

    What are some helpful activities you do?

    Katherine replied 5 years, 4 months ago 4 Members · 3 Replies
  • 3 Replies
  • Ryan Slade

    Member
    August 8, 2019 at 10:06 am

    1. Exercise – I really focus on my legs and core. I do this about 5 days a week for about an hour.

    2. Eat right – In addition, I intermittently fast for 12-18 hours per day.

    3. Win hof method – cold showers and breathing exercises.

    4. Learn another language – I spend 10 minutes a day on thus and am really just training my brain. I use duolingo as it is top ratedand free.

    5. Brain games – I also do this 10 minutes a day and use BrainHQ. The theory is neuroplasticity. I use the free version.

  • Tim Muranelli

    Member
    August 11, 2019 at 11:48 am

    My father has always used something like this…
    https://www.4mdmedical.com/306.html

    Simple peg board exercises for maintaining some of the finer motor skills in your hands and arms.

  • Katherine

    Member
    August 17, 2019 at 1:54 pm

    Pokemon Go

    No, seriously. It motivates me to go on short walks during lunch or after work, playing the game involves some manual dexterity, and challenging myself to stand unsupported while playing is good practice in balancing-while-focusing-on-something-else.

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