A gift-giving guide for those who have a loved one with FA

This is the time of year when I ask my husband, Dave, what he wants for Christmas. He usually replies: “I don’t know, I haven’t thought about it.” He repeats it year after year, especially as Christmas or his birthday draws near. So, mostly, I select gifts without his guidance.

Sometimes my gifts are a hit. Although he isn’t a clothes guy, last year I got him a coat that he wears all the time. He loves playing basketball, so I bought him a hoop for the driveway. That turned out to be a flop. He didn’t use it, even though he played weekly with friends. Now, he can no longer play due to an arthritic knee. I get it. Shooting hoops alone in the driveway isn’t the same as playing a game with friends.

My Friedreich’s ataxia (FA) symptoms make it harder for me to get around, so I mostly stick to online shopping. I like to find unique gifts from small businesses. This can be a little tricky online, but sites like Etsy and eBay make it easier by bringing small shops together on one platform and offering customer guarantees.

Recommended Reading

November 17, 2023 Columns by Elizabeth Hamilton

How I’m setting personal boundaries this holiday season

Gifts for people with FA

Dave is not a gift guy — receiving or giving. That means, for Christmas and my birthday, I make him a pretty detailed list, and my surprise is which gifts he picks. I was thinking loved ones of people with FA might also appreciate some ideas. Maybe you’re like Dave, or maybe you’re just stuck.

When choosing gifts for people living with FA, select items that enhance accessibility, comfort, independence, and happiness in everyday life. Practical isn’t always the way to go, though. Remember, you know your loved one best!

Practical and helpful gifts:

• Adaptive devices: Specialized tools such as ergonomic utensils, easy-grip cups, button hooks, or zipper pulls can make daily tasks easier for those with limited dexterity.
• Mobility aid accessories: Personalized cane covers, wheelchair bags, or lap trays can add style and convenience.
• Voice-activated technology: Smart speakers, voice-controlled lights, or tablets can increase independence around the home.
• Comfort items: Heated blankets, supportive pillows, and soft throws offer physical comfort and warmth.
• Weighted blankets: These can provide a sense of security and help with relaxation and sleep.

Entertainment and engagement gifts:

• Audiobooks make it easy to enjoy stories. I love my Audible subscription.
• Streaming service subscriptions: Gift cards for Netflix, Spotify, or other platforms offer entertainment options that let you sit back and enjoy from the comfort of your couch.
• Hobby supplies: Art kits, puzzles with larger pieces, or adaptive video game controllers can encourage creativity and fun.
• Music devices: Wireless headphones or speakers make listening easy.

Self-care and wellness gifts:

• Massage tools: Handheld massagers or massage gift certificates can help relieve muscle tension.
• Personal care products: Moisturizing lotions, bath bombs, or spa kits support relaxation and self-care. Ahh!
• Adaptive clothing: Clothes with magnetic buttons, Velcro closures, or soft fabrics make dressing easier and more comfortable. Several sites offer adaptive clothing, such as IZ Adaptive and Zappos.

Meaningful experience gifts (my favorite category):

• Virtual classes or events: Online cooking, art, or music classes can be enjoyable and accessible. Ensure that individuals with poor coordination can be accommodated and treated with patience and respect.
• Accessible outings: Tickets to wheelchair-accessible concerts, museums, or parks make for memorable experiences. A big gift of travel would be amazing. You can find accessible touring options online.
• Personalized gifts: Custom photo books, inspirational artwork, a gift certificate to a tattoo parlor, or handwritten letters show thoughtfulness and care.

The most meaningful gift anyone with FA can receive is your love, kindness, and steadfast support. What we truly need is for you to stand by us despite our daily challenges. So, if you’re struggling to find a gift for someone with FA, remember to ease the pressure by recognizing that your friendship and love are more valuable than any material possession.

Dave has a habit of putting off shopping until Christmas Eve. Maybe he’ll do it again this year. He’s already given me 35 years of love and support, with the rest of his years promised to me. That’s monumental. He might be the best gift-giver after all.

Note: Friedreich’s Ataxia News is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or another qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. The opinions expressed in this column are not those of Friedreich’s Ataxia News or its parent company, Bionews, and are intended to spark discussion about issues pertaining to Friedreich’s ataxia.