“Don’t hold a glass over the flame/Don’t let your heart grow cold/I will call you by name/I will share your road.” –Mumford & Sons. “Matt?” my professor repeated for who knows how many times, interrupting the imaginary…
Little Victories - a Column by Matthew Lafleur
In my memory, we were always lithe and sure-footed. Two shadowy cat burglars, but with no inclination to steal. So, not burglars; we were spies. Spies! My aunt and uncle and their kids arrived at my house one Saturday. Our families got together almost every weekend…
I gritted my teeth. The August sun in south Louisiana pounded unrelentingly onto my head. Drops of sweat trickled down from my hairline, along the sides of my face. I’ve never really sweated very much, but since I started regularly riding a recumbent tricycle, I’ve found…
Reminders of life’s beginning and end kept cropping up unexpectedly this week. My 4-month-old niece was baptized, initiated into her parents’ faith, and began a journey. Days later, I heard from an online friend that his son died of complications from FA last year. A few…
In an instant, my plans and dreams vanished; I was left wandering through life with no set future, and it was scary. I can remember parts of that day in ’97: hopping onto a swiveling chair at my dad’s workplace, logging on AOL before…
Recent Posts
- First-in-human trial now testing oral FA drug in healthy volunteers, recruiting
- Staying organized with FA isn’t easy, but it helps me cope with challenges
- The Heart of Living With FA: Two Stories, One Shared Understanding
- Finding reasons to be happy with Friedreich’s ataxia
- Experimental FA gene therapy targeting brain and heart earns EU orphan status