Segment 1: FA diagnostic process and journey
In the first segment, Andrew and Esther discuss the process of diagnosing Friedreich’s ataxia with Dr. Lynch and what that journey looked like for Matt and Kendall.
Beyond the Friedreich's Ataxia Basics
Friedreich’s Ataxia News hosted a live webinar on Nov. 1, 2023, for patients and caregivers affected by Friedreich’s ataxia (FA). Panelists included neurologist and FA expert David Lynch, MD, PhD, financial expert Kelly Piacenti, and Matt Lefleur and Kendall Harvey, both of whom are living with FA. Along with hosts Andrew and Esther Schorr, they discussed a variety of topics including the diagnosis journey; the treatment and management landscape of FA; managing lifestyle, wellness, and daily routines, and financial considerations for people affected by FA. Check out the highlights from the webinar below.
Video highlights
Segment 2: Treatment and symptom management of FA
Dr. Lynch, Matt, and Kendall discuss the current treatment and management landscape of Friedreich’s ataxia and what a newly approved treatment means for the FA community as a whole.
Segment 3: Lifestyle and day-to-day-management of FA
The panelists discuss strategies for patients and caregivers to keep themselves physically, mentally, and emotionally well, as well as best practices for managing daily routines.
Segment 4: Managing finances with FA
Andrew and Esther discuss the financial considerations of living with a chronic disease like Friedreich’s ataxia, as well as available resources, with Kelly Piacenti, along with Matt and Kendall.
Segment 5: Q&A and wrap-up
The panelists come together with Andrew and Esther to answer some submitted questions from the audience and share some final thoughts on the future of Friedreich’s ataxia research.
Webinar tackles unique challenges of FA and strategies for success
Hot topics of the Nov. 1 webinar included the challenges of living with Friedreich's ataxia, strategies for success, and the recent "game-changing" therapy approval. Read more about the highlights here.
