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Promoting informed communication in FA care

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Whole-body FA care

Trusting your doctors

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Liam Kruesi, who lives in Manalapan, New Jersey, was diagnosed with Friedreich’s ataxia (FA) in 2014. He shares why being prepared with accurate information is key to having open, effective conversations with healthcare providers.

Transcript

To that, I would say the most important thing is just coming prepared — coming with the actual facts that you have around it.

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You can’t talk to really anybody or go into a discussion about a particular medication with very limited information on the medication and expect the communication to be good.

Communication is both ways. You have to understand the particulars about what you’re talking about. You can’t be in a position where you can only accept what the other party is saying. That’s just not good for talking to somebody.

I would say coming prepared is the first and foremost method you need for open communication with your healthcare professionals.

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