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Improving FA care compliance via mindset shifts and tools

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FA structure and support

Informed communication

Whole-body FA care

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Rigid thinking

Personalized care

Taking time

Staying proactive

Calm in trials

Treatment fatique

Constant communication

Patient autonomy

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Jonathan Strober, MD, a pediatric neuromuscular specialist based in San Francisco, shares small tools that make a big difference in FA treatment routines.

Transcript

I think when trying to strengthen an FA patient’s treatment compliance — I think, again, there’s a lot of tools out there. I think finding a motivation is super important. I think if you’re super motivated to do better and you believe that the treatment you’re on is going to help you do better, that is the best place to start.

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I think if you’re not believing in what’s happening, you’re not going to take your medicine, or you’re just going to think about it and not do it — or do your therapies or whatever else is going on.

And then utilizing all the resources around you, be that electronic, be that other people who maybe can help. If you have caretakers who are helping you with meals, say, they can always make sure your medication is given with meals.

So there’s some reminders. Using pillboxes is an old way if you couldn’t remember if you took your medication, you could go to your pillbox and see if it was still in there. It’s just a little extra work to set that up.

So I think that there are a lot of tools out there that can help you maintain a good treatment regimen.

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Obtaining a deeper understanding of FA treatments
Self-advocating to find an FA regimen that works
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