Skip to content
Friedreich's Ataxia News logo
  • Forums
  • About FA
    What is FA?
    Causes
    Symptoms
    • Cardiomyopathy
    Diagnosis
    Treatments
    • Approved treatment: Skyclarys
    • Experimental Treatments
    • Non-drug Treatments
  • News
  • Columns
    Defining Yourself — Jean Walsh
    My Darling Disability
    — Kendall Harvey
    Little Victories — Matthew Lafleur
    Recalibrating – Elizabeth Hamilton
    Archived Columns
    • No Good Excuse — Sean Baumstark
    • Hope from Home — Katie Griffith
    • An Unexpected Journey — David Riley
    • Practical Guide to Life with FA — Christina Cordaro
  • FA education
    Videos: Start strong, stay steady
    My FA diagnosis story
    Growing up with FA
    Talking to your child about FA
    Assistive equipment, aids, and adaptations
    Guidance for parents of children with FA
    FA treatment options
    Exercise and physiotherapy
    Living with FA
    FA support and resources
    FA and mental health
    Essential travel tips
    Speech therapy
    AAC devices
    Occupational therapy
    FA and diet
    Late-onset FA
    Aging with FA
  • Find a physician
  • For professionals
  • Advocacy partners
  • What can we help you find today?

    • Forums

Improving FA care compliance via mindset shifts and tools

  • Share on Facebook
  • Share on Twitter
  • Share on Reddit
  • Share via Email

Jonathan Strober, MD, a pediatric neuromuscular specialist based in San Francisco, shares small tools that make a big difference in FA treatment routines.

Transcript

I think when trying to strengthen an FA patient’s treatment compliance — I think, again, there’s a lot of tools out there. I think finding a motivation is super important. I think if you’re super motivated to do better and you believe that the treatment you’re on is going to help you do better, that is the best place to start.

Read More

I think if you’re not believing in what’s happening, you’re not going to take your medicine, or you’re just going to think about it and not do it — or do your therapies or whatever else is going on.

And then utilizing all the resources around you, be that electronic, be that other people who maybe can help. If you have caretakers who are helping you with meals, say, they can always make sure your medication is given with meals.

So there’s some reminders. Using pillboxes is an old way if you couldn’t remember if you took your medication, you could go to your pillbox and see if it was still in there. It’s just a little extra work to set that up.

So I think that there are a lot of tools out there that can help you maintain a good treatment regimen.

Print This Page

Trusting doctors’ expertise in FA treatment decision-making
Obtaining a deeper understanding of FA treatments
Self-advocating to find an FA regimen that works
Envelope icon

Subscribe to our newsletter

Get regular updates to your inbox.

This field is for validation purposes and should be left unchanged.

Bionews, Inc.

3 W Garden St
Suite 700
Pensacola, FL 32502
Website: bionews.com
Email: [email protected]
Phone: 1-800-936-1363

  • About Us
  • Leadership
  • Our Culture
  • Editorial Policy
  • Advertising Policy
  • Corrections Policy
  • Terms of Service
  • Privacy Policy
  • Careers
  • Contact Us
Disclaimer

This site is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

Copyright © 2013-2025 All rights reserved.