How Reflecting on My Life Increases Urgency For Me

Life is more fragile than I sometimes realize. This is true for everyone, rare disease or not. Most days, I feel invincible and think about the next 40 years of my life. On other days, I recognize that I may not lap the four-decade mark again. I know the prognosis…

Choosing a Season of Rest and Rejuvenation

Sometimes I wish that life would slow down, and some days, I convince myself that it will. That’s probably not true, though. I tend to take on projects and manage my calendar in seasons. This method implies that a “season” of less work and fewer projects, a period…