Practical Guide to Life with FA — Christina Cordaro

Navigating huge crowds at major events can cause great anxiety. For example, going to an arena concert or an NFL football game can include encounters with crazy fans, rude comments, long lines, and difficulty transporting to and within the vicinity. I used to avoid major events because of those reasons.

In my hotel hospitality job, I can count on working long hours, multiple days in a row, and on holidays and weekends. I knew what I signed up for when I graduated with a hospitality degree and accepted that first job offer. The thing I didn’t realize was that I…

My husband Justin and I returned last week from our honeymoon in the Bahamas following our beautiful wedding on Oct. 20. I was determined that I wouldn’t let Friedreich’s ataxia (FA) deter me from doing the things I wanted to on this trip. I also didn’t want to experience the…

This is the final countdown. The big day has finally come. Tomorrow, Saturday, Oct. 20, I am marrying the man of my dreams, Justin. These days, it is hard to enter a relationship, especially when living with a rare disease that one can’t even begin to understand. Before I met…

My family and I have always been religious, with strong beliefs, faith, and morals. My mother is Catholic and raised my sister as such. My father, an Episcopalian, raised my brother and me in his church. From elementary school to high school, I attended church and Sunday school weekly. I loved…

Sweaty palms, excitement, hope, and motivation — I’m preparing to be in position at the starting line at the rideATAXIA Philly event. The annual bike ride takes place in Southern California, Northern California, Dallas, Chicago, Philadelphia, and Orlando. This fundraising event seeks to empower…

Recently, I saw the following quote shared on social media. It stands out, particularly when I am making plans to go to various public places. “Ramps should be the standard. Automatic doors should be the standard. Elevators in…

Shoes are essential for making a statement on one’s wardrobe and personality. This is especially true for me as a young woman with Friedreich’s ataxia. I want to be able to fit in, yet still feel comfortable and safe. It’s been difficult to find a pair of shoes that best…

The three-day Labor Day weekend often means relaxing and spending time with people you may not often see. This holiday, my fiancé Justin and I visited his hometown near Scranton, Pennsylvania, to see family and friends. It had been two months since our last visit. It was a…

When you plan a destination or a weekend getaway, it is wise to make travel and transportation arrangements and detail an itinerary of what you will do while on your trip. However, when you have a disability, extra steps are involved in planning. My planning includes three components: plan in advance,…

I know that birthdays can be tough for some patients living with Friedreich’s ataxia. It can be a reminder of how much this disease keeps taking from us each year. I completely understand. It is hard not to get down on the things we still can or can’t do. However,…

My name is Christina Logan, and doctors diagnosed me with the rare neuromuscular disorder Friedreich’s ataxia at the age of 21. I grew up in Holland, Pennsylvania, with my dad, mom, sister (Catherine), and brother (Matthew). I was very active in the music community and participated in choir, the marching…