Forum Replies Created

  • ray-cotton

    Member
    July 27, 2023 at 2:25 pm in reply to: Skyclarys

    Late stage diagnosis (44, now 48). I am on my third day, no noticeable side effects or improvements- it’s early. I will keep this updated as I progress with treatment.

  • ray-cotton

    Member
    June 19, 2023 at 9:30 pm in reply to: Reata & Insurance

    Hi, Christina; I am sorry you got that feedback from Cigna.  I also have Cigna, and I received an approval letter from them.  The difference, I think, is that my wife is the CHRO Chief Human Resources Officer for her company.  That means I asked her to call her insurance broker and add this to her company’s policy.  Is that unusual? Yes and no.  She has had people thru the years specifically ask for MS drugs to be covered by the company, and she has complied because the cost to the company is minuscule. My advice, sit down with your Human Resources department and ask them to add it to the policy, then ask the folks at Reata’s Reach program to rerun the process.  You’re also welcome to PM privately if you need additional guidance.

    Best,

    Ray

  • ray-cotton

    Member
    August 4, 2022 at 3:44 pm in reply to: Do you have any advice for experiencing slurred speech?

    Hi, Christina, I was experiencing some slurred speech. I hired a speech therapist thru Stanford which has been helpful. My key takeaway has that most problems surprisingly come from a lack of breath control and having enough oxygen to complete sentences.

    Best,

    Ray

  • ray-cotton

    Member
    July 27, 2022 at 7:52 am in reply to: DMF- Dimethyl Fumarate

    Hi, Katie,

    I found this study in the NIH (https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6546270/), a source that I consider credible and well facilitated.

    Although usage is off-label (not for MS), which means you pay full retail price, my experience over three weeks has been positive.  The side effects have been unusual, face and torso rash for an hour that feels like sunburn and intermittent stomach pain, lasting about an hour a day.  I also had to take a comprehensive blood test due to the strain the medication can place on your liver and white-blood-cell count.

    I followed the studies’ recommendations, which were also supplemented with Resveratrol, and I have seen better coordination and speech patterns in a short time.  The study clearly shows an increase in FRX levels.

    The study, I think, speaks for itself.  Great results, and I concur.  A few folks have direct messaged me, and I am happy to answer questions directly or on this platform.

    Best,

    Ray