mercedes
Forum Replies Created
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Virginia Beach VA
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Hi¡ My daughter always take Idebenone, and we noticed a lot of improve in her energy…
Natalie, keep calm with surgery, its hard but in a cople of months kids are totally recovered..and I thing (personal opinion) the sooner the better, my girl is happy for that, he was wearing brace for almost 3 years 24 hours per day..so now as a teeneger she feels more confident.. Good luck and Hope¡ -
Hello¡ I am a mother of an almost 15 years girl diagnosticated 2 year ago. She is taking Idebenona, Vitamine B1 and Vitamine E.
Idebedone is not available now in Spain instead of it the doctor recommend Q10 (we are living now in USA for 3 years) but we get a Farmacy in Spain wich prepare the Idebenone pills for us and we brought with us a lot of them. She had spinal surgery 18 months ago and she is still walking and doing everything by herself.
Thanks a lot for creating this forum and sorry for my English…is not good enough yet. -
My daughter started with scoliosis at 10 and was diagnosed 1 month before turning 13. She had scooiosis surgery at 13 and her heart is still good. She vill be 15 in two weeks.