@merche
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mercedes started the topic Dimethyl Fumarate in the forum Living with FA 1 year, 7 months ago
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mercedes replied to the topic Etravirine… in the forum FA Research, Scientific News, & Clinical Trials 1 year, 10 months ago
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mercedes replied to the topic Location of those on this forum in the forum Living with FA 1 year, 10 months ago
Virginia Beach VA
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mercedes replied to the topic Etravirine… in the forum FA Research, Scientific News, & Clinical Trials 1 year, 11 months ago
3 weeks with Etravirine
3 weeks with Etravirine -
mercedes replied to the topic Medication in the forum Parents & Caregivers of Those with FA 1 year, 11 months ago
Hi¡ My daughter always take Idebenone, and we noticed a lot of improve in her energy…
Natalie, keep calm with surgery, its hard but in a cople of months kids are totally recovered..and I thing (personal opinion) the sooner the better, my girl is happy for that, he was wearing brace for almost 3 years 24 hours per day..so now as a teeneger she…[Read more] -
mercedes replied to the topic Medication in the forum Parents & Caregivers of Those with FA 1 year, 11 months ago
Hello¡ I am a mother of an almost 15 years girl diagnosticated 2 year ago. She is taking Idebenona, Vitamine B1 and Vitamine E.
Idebedone is not available now in Spain instead of it the doctor recommend Q10 (we are living now in USA for 3 years) but we get a Farmacy in Spain wich prepare the Idebenone pills for us and we brought with us a lot of…[Read more] -
mercedes replied to the topic Age of Diagnosis in the forum Living with FA 1 year, 11 months ago
My daughter started with scoliosis at 10 and was diagnosed 1 month before turning 13. She had scooiosis surgery at 13 and her heart is still good. She vill be 15 in two weeks.
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mercedes posted a new activity comment 1 year, 11 months ago
Thanks¡¡
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mercedes became a registered member 1 year, 11 months ago
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Hey Mercedes,
Thanks for joining the FA Forums! I’m grateful that you signed up, because one of the most difficult part of FA to deal with is how rare it is — not many people seem to understand! So you are helping us create a place where people affected by FA can share advice and information directly with one another. You’re an important par…[Read more] -
Hey Mercedes! Thank you for signing up and welcome to the FA forum!
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