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Name

Jessie Beatty
Nickname

jessie-beatty
Year of Birth

2009
Gender

Female
Location

northern virginia
Relationship

Patient
Short Bio

I was diagnosed with FA just a few months ago.  I have struggled with ataxia since I was 6, we expected FA but genetic test kept coming back normal. When my cardiologist found the thickening in my left ventricle I knew I had FA.  Its been hard but I am so hopeful a drug will become available soon.
How did you hear about us?

FA Website
How long have you or the person that you are caring for had FA?

4 years
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