Hi – I have tried to respond in the past but the forum page would not accept my response. My husband has FA, diagnosed via genetic testing. It is late onset – he didn’t show symptoms until his 50s. He was able to get the medication through Reata’s program and his insurance, Blue Cross Federal for federal employees. He started the medication in August and doesn’t have to pay any copay. We haven’t noticed any major improvements, but his decline isn’t rapid either.
February 26, 2024 at 2:53 pm
in reply to: Skyclarys
My husband started taking Skyclaris last August. A few weeks ago is cholesterol came back elevated, so we’re making dietary adjustments. If that doesn’t help, he’s going to reduce the dosage.
On another note, a woman at church yesterday told him that his gait looked smoother and less teetering.
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