Base

Name

Gina

Last Name

Hannah

Nickname

Gina Hannah

Year of Birth

1964

Gender

Female

Location

Huntsville, AL

Relationship

Family

Short Bio

My husband was diagnosed with FA a few years ago after genetic testing confirmed what we were seeing in symptoms. His older brother also has the disease. We are working to get the new drug, Skyclarys, in hopes it will slow progression.

How did you hear about us?

FA Website

How long have you or the person that you are caring for had FA?

Symptoms first presented in 2016; confirmed with genetic testing in 2020.

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