This topic contains 1 reply, has 2 voices, and was last updated by  Angela Dixon 2 weeks, 1 day ago.

  • Author
    Posts
  • #14595
     Carolyne OCallaghan 
    Participant

    I have a friend with FA and over the last year I have seen her rapid deterioration. I am really struggling with her erratic behaviour – is this part of FA, I’ve researched and I have found that it’s not supposed to affect cognitive behaviour but I am starting to think that it really does. She was diagnosed some 30 plus years ago so she is in the very advanced stages and I would like to know if anyone is going through the same o has experienced similar. Thank you

  • #14681
     Angela Dixon 
    Participant

    I was also diagnosed about 35 years ago although I knew something was wrong about 43 years ago. Right now, the most challenging thing I face is bladder control and speaking. I get really upset when people cannot understand me. FA is a very frustrating thing to deal with and I believe every has different emotions about it.

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