Friedreich’s Ataxia News Forums Forums Living With FA What is around the corner

  • What is around the corner

    Posted by carolyne-ocallaghan on August 21, 2019 at 6:50 pm

    I have a friend with FA and over the last year I have seen her rapid deterioration. I am really struggling with her erratic behaviour – is this part of FA, I’ve researched and I have found that it’s not supposed to affect cognitive behaviour but I am starting to think that it really does. She was diagnosed some 30 plus years ago so she is in the very advanced stages and I would like to know if anyone is going through the same o has experienced similar. Thank you

    angela-dixon replied 4 years, 7 months ago 2 Members · 1 Reply
  • 1 Reply
  • angela-dixon

    August 30, 2019 at 11:48 am

    I was also diagnosed about 35 years ago although I knew something was wrong about 43 years ago. Right now, the most challenging thing I face is bladder control and speaking. I get really upset when people cannot understand me. FA is a very frustrating thing to deal with and I believe every has different emotions about it.

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