• Rare Disease Day

    Posted by Katie Griffith on February 3, 2022 at 10:00 am

    February 28 is Rare Disease Day. We will spend some time this month highlighting different aspects of rare disease, and we really hope you will join in the discussion!

    Four years ago, when my son, Noah, was diagnosed with Freidreich’s ataxia (FA), it was such a shock. I had googled his symptoms so many times, yet I don’t remember ever hearing about FA until his neurologist pulled up the words on his computer screen and told me that it was likely Noah’s diagnosis.

    Do you remember the first time you heard about FA? Share your experiences below.


    Katie Griffith replied 2 years, 5 months ago 0 Member · 0 Replies
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