Friedreich’s Ataxia News Forums Forums Living With FA New Post from "Little Victories" – A Steadfast Anchor

  • Shandra

    Member
    February 13, 2019 at 12:36 pm

    Great article!!! I love both of ya 😀

    Also it’s funny you chose the word steadfast. Was that intentional (referencing the Steadfast/Actimmune trials for FA)?

    • Matt Lafleur

      Member
      February 13, 2019 at 12:47 pm

      If I say yes, will you think I’m smarter?

      Haha- no. Thanks so much for reading though.

    • Frankie Perazzola

      Member
      February 13, 2019 at 6:01 pm

      Didnt even think about that hahaha clever, Shandra!!

  • Deleted User

    Deleted User
    February 13, 2019 at 1:41 pm

    Very good read once again! I forget at times I’m not the only one hurting and I tend to isolate myself from people. I’m slowly but surely letting myself known and want to help others younger than me. I can’t wait to find friendships like Matt and Frankie’s.

    • Matt Lafleur

      Member
      February 13, 2019 at 2:02 pm

      Jesus, this is probably the best thing I’ve read today!

    • Frankie Perazzola

      Member
      February 13, 2019 at 6:11 pm

      @jesusr this makes me happy. Feeling that way is common and totally okay. Just remember, you have a group of people who understand whenever you feel ready.

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