When I was first diagnosed, I was a child so I didn’t make my medical decisions lol. My parents had me take it for about 5 years. Then, I enrolled in a clinical trial and had to discontinue Idebenone for the trial. I never started back on it again afterwards, and I personally experienced no difference in progression rate or cardiac stability. It has been almost 4 years now that I have been off of it and any other supplements.
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