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    • #19181
      Katie Griffith

        Rare Disease Day might seem like a strange thing to celebrate. For most of us, it wasn’t a happy day when we or our loved ones were diagnosed.

        As I personally have processed and accepted my son’s diagnosis of Friedreich’s ataxia, I do celebrate him and want others to understand what he is experiencing.

        While we may not celebrate the disease itself, we celebrate those who persevere each day!

        Is it hard for you to celebrate Rare Disease Day? 

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