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What was your experience like receiving your FA diagnosis?
To receive a confirmed Friedreich’s Ataxia diagnosis, this includes a genetic blood test, physical/ neurological tests and multiple heart tests (EKG and a Echocardiogram). It could be an easy or long process, since FA is so rare.
It took me 4 different hospitals and neurologists to finally get an answer for that reason.
What was the diagnosis journey like for you? Did you get incorrect diagnoses before you found the right one?
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