FARA

FA Research Receptions provide individuals living with FA and their families with up-to-date information about Friedreich’s ataxia research and an opportunity to meet others in the community.

This year’s Cure FA Soirée will be Saturday evening, June 7, at the Omni Hotel in Oklahoma City, and feature performances by talented musicians along with dinner for hundreds of guests from across the country. Earlier that day, FA families, researchers, and pharmaceutical companies will gather to discuss the latest research and potential treatments.

Get ready for an amazing day at Channahon Central Park! 🚴‍♂️ Whether you're up for a 27, 12 or a 4-mile ride or a 1-mile walk/ride within the park, there's something for everyone. After your ride, join us for a celebration of your incredible fundraising efforts to help find treatments and cures for FA.

Join us at Montgomery County Community College for a 4-, 8-, 26-, or 46-mile ride, or a 1.4-mile walk/ride on campus, plus an awesome celebration of your fundraising efforts to help find treatments and cures for FA.

FARA and the Friedreich’s Ataxia Center of Excellence at Children’s Hospital of Philadelphia (CHOP) proudly host the 2025 Friedreich’s Ataxia Symposium a day of education and community.