Many readers of Friedreich’s Ataxia News have reached out and urged us to do more to bring additional awareness about clinical trials applicable to the FA patient community. In response we are launching a Friedreich’s Ataxia clinical trial registry. For participants in this program, we may reach out directly to inform you of a clinical trial that may be specifically relevant to you.
Communication between Friedreich’s Ataxia News and program participants is strictly confidential. We do not share your personal information with third parties except when you have expressly provided us permission to do so and requested that we share such information on your behalf. We will not use, sell, or assign your email address for any purpose other than to communicate with you about clinical trial services.
If you are interested in participating in our clinical trial registry, please complete the brief contact form below. If we identify a trial that may be of interest, we will communicate via email informing you of the opportunity and will provide you information on the sponsor company. With your consent, we will then forward your information to a clinical trial study site in your area for review.