Posts by: Wendy Henderson

Wendy Henderson

Wendy is a proven blogger and social media manager who has helped to build online communities for businesses and organizations. She currently heads the website’s social outreach online through social media platforms such as Facebook, Twitter, and Pinterest.

November 1, 2017May 15, 2019

Ronde Barber and Kyle Bryant Talk About Friedreich’s Ataxia

In this video, Tampa Bay Buccaneers’ football player Ronde Barber talks about his involvement with the non-profit organization, Friedreich’s Ataxia Research Alliance (FARA), and spokesperson Kyle Bryant talks about what it’s ... Read more

October 25, 2017

5 Things to Know About an Ataxia Diagnosis

If you or a loved one have been diagnosed with ataxia, it’s normal to feel overwhelmed and concerned about what the future has in store. We’ve compiled a list ... Read more

October 18, 2017May 16, 2019

7 Stress-Busting Tips for Parents of Children With Friedreich’s Ataxia

Caring for a child with a chronic illness such as Friedreich’s ataxia can be very stressful and can take its toll emotionally. The Friedreich’s Ataxia Parents’ Group suggests ways ... Read more

September 21, 2017

Explaining Friedreich’s Ataxia

Friedreich’s ataxia (FA) is a genetic and progressive neuromuscular disease that attacks the body’s nerves and muscles. Usually occurring in childhood, symptoms of FA typically appear between the ages of 5 and 18. ... Read more

September 20, 2017February 6, 2019

9 Things to Know About the Inheritance of Friedreich’s Ataxia

Friedreich’s ataxia is an inherited disease that affects movement and coordination. It’s a progressive disease with symptoms including loss of strength, weakened muscles, spasticity, impaired speech, hearing and vision problems, and in ... Read more

August 30, 2017

5 Major Symptoms of Friedreich’s Ataxia

Friedreich’s ataxia (FA) is a rare genetic disorder where the body produces antibodies that limit the production of frataxin, a protein vital for nerve and muscle health. A lack of frataxin leads ... Read more

August 30, 2017February 8, 2019

Young Friedreich’s Ataxia Patient Talks About How the Condition Is Inherited

In this video from Randall Juip, Claire, a patient who was recently diagnosed with the genetic disorder Friedreich’s ataxia (FA), discusses the cause of the disease, its symptoms, and its ... Read more

August 30, 2017

The Medical Management of Friedreich’s Ataxia

While there is no cure for Friedreich’s ataxia, there are treatments that can help patients manage symptoms and improve their quality of life. Treatment for Friedreich’s ataxia consists of medications, physical therapy, and ... Read more

August 29, 2017March 15, 2019

9 Things to Know About the Inheritance of Friedreich’s Ataxia

Friedreich’s ataxia is an inherited disease that affects movement and coordination. It’s a progressive disease with symptoms including loss of strength, weakened muscles, spasticity, impaired speech, hearing and vision problems, and ... Read more

August 28, 2017

10 Useful Things to Know If You’re Attending #IARC2017

This year’s annual International Ataxia Research Conference (IARC) will be taking place in Pisa, Italy from September 27 to 30. MORE: Life at college with Friedreich’s ataxia Held in the ... Read more

August 24, 2017

7 Stress-Busting Tips for Parents of Children With Friedreich’s Ataxia

Caring for a child with a chronic illness such as Friedreich’s ataxia can be very stressful and can take its toll emotionally. The Friedreich’s Ataxia Parents’ Group suggests ways ... Read more

August 23, 2017June 3, 2019

Patient Stories: Jamie Lee and Sam Dwyer

In this video from Georgia Maher, we meet Jamie Lee Dwyer and her sister Sam who both suffer from the rare degenerative neuromuscular disease, Friedreich’s ataxia. It’s estimated the ... Read more

August 21, 2017August 28, 2017

The Medical Management of Friedreich’s Ataxia

While there is no cure for Friedreich’s ataxia, there are treatments that can help patients manage symptoms and improve their quality of life. Treatment for Friedreich’s ataxia consists of medications, physical therapy, ... Read more

August 17, 2017January 31, 2019

5 Types of Treatment for Friedreich’s Ataxia

Friedreich’s ataxia (FA) is a genetic neuromuscular disease that can lead to motor control issues and often leads to the inability to walk, problems with the senses and swallowing, ... Read more

August 14, 2017May 15, 2019

Patient Stories: Life at College With Friedreich’s Ataxia

Social Clips

In this video from Merissa Blitz, Alison Avery talks about living with Friedreich’s ataxia (FA) while at college. Alison is a freshman at Elon University in North Carolina and is ... Read more

August 14, 2017February 4, 2019

5 Things to Know About an Ataxia Diagnosis

If you or a loved one have been diagnosed with ataxia, it’s normal to feel overwhelmed and concerned about what the future has in store. We’ve compiled a list ... Read more

August 10, 2017August 29, 2017

Ronde Barber and Kyle Bryant Talk About Friedreich’s Ataxia

In this video, Tampa Bay Buccaneers’ football player Ronde Barber talks about his involvement with the non-profit organization, Friedreich’s Ataxia Research Alliance (FARA), and spokesperson Kyle Bryant talks about what it’s ... Read more

August 7, 2017January 28, 2019

5 Major Symptoms of Friedreich’s Ataxia

Friedreich’s ataxia (FA) is a rare genetic disorder where the body produces antibodies that limit the production of frataxin, a protein vital for nerve and muscle health. A lack of frataxin ... Read more

August 7, 2017May 17, 2019

Explaining Friedreich’s Ataxia

Friedreich’s Ataxia (FA) is a genetic and progressive neuromuscular disease that attacks the body’s nerves and muscles. Usually occurring in childhood, symptoms of FA generally appear between the ages of 5 ... Read more