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Recent Posts

• My dad’s perspective on 2 of his 3 children living with FA
• FA’s progression is teaching me how to better advocate for myself
• Vatiquinone found to slow FA progression by 75% after 1.5 years
• I’ve been on Skyclarys for nearly 5 years. Here are my thoughts.
• Short-read genome sequencing test may help diagnose atypical FA
• A tribute to the kindness of strangers along our FA journey
• A typical day in my life with Friedreich’s ataxia
• Growing up with FA while yawning through a superhero movie
• Low-dose CTI-1601 safely increases frataxin in skin, mouth cells
• Simple questions help me keep life with FA in perspective