Advocacy Partners

We are honored to partner with nonprofit advocacy organizations to amplify their missions, share helpful resources, and ensure patients and families have access to information that supports everyday decision-making. The information featured below was provided by our advocacy partners as part of this collaboration.

National Ataxia Foundation

The National Ataxia Foundation (NAF) was established in 1957 to help persons with Ataxia and their families. We work closely with the world’s leading Ataxia researchers and clinicians, promoting exchanges of ideas and innovation in Ataxia discovery.

Muscular Dystrophy Association

Muscular Dystrophy Association (MDA) is the #1 voluntary health organization in the United States for people living with muscular dystrophy, ALS, and over 300 related neuromuscular conditions.