Christina Cordaro, who lives in Pennsylvania, was diagnosed with Friedreich’s ataxia (FA) in 2011 at the age of 21. She explains that ongoing communication — beyond yearly checkups — helps patients feel supported, informed, and truly connected to their care.
Transcript
I think it’s important to always be in constant communication with the patient, instead of leaving it just for the yearly checkup.
Just having constant, open discussion — whether through a hospital portal, emails, phone calls, or text messages — always being in the loop.
