Jonathan Strober, MD, a pediatric neuromuscular specialist based in San Francisco, shares his perspective on why it’s important not to rush treatment changes in FA and to give new therapies time to show their effects.
Transcript
I think when you’re thinking about changing treatment plans, it’s really important to think about not just jumping into one because you’re unhappy where you are.
I think what we find is that when patients come into clinic, they may be having a bad day for doing some sort of monitoring or scales — they may not measure as well one day as they were previously, and if they came back another time, they might actually do better.
So I think not looking at the numbers specifically is a good measure to look at. Not jumping quickly from one to another and then hoping to jump back.
I think also, if you do switch to a new medication, it’s really important to try to give it time to see how it’s going to affect, and not expect that the drugs are going to work immediately.
