Christina Cordaro, who lives in Pennsylvania, was diagnosed with Friedreich’s ataxia (FA) in 2011 at the age of 21. She shares why treatment decisions for FA should consider real-life challenges and the unique path each patient takes.
Transcript
I think that healthcare professionals don’t think about the outside factors. Well, there could be costs, access to the medicine, or what the future holds once you start taking the medicine and how it plays out to keep staying on it.
I think it’s also important to note that every patient’s journey is different. So just to have a plan set in stone for each patient doesn’t always work.
