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  • About FA
    What is FA?
    • Causes
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    • Approved treatment: Skyclarys
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  • Living with
    Living with FA
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  • Community
    Perspectives
    • Defining Yourself — Jean Walsh
    • My Darling Disability
      — Kendall Harvey
    • Little Victories — Matthew Lafleur
    • Recalibrating – Elizabeth Hamilton
    Archived Columns
    • No Good Excuse — Sean Baumstark
    • Hope from Home — Katie Griffith
    • An Unexpected Journey — David Riley
    • Practical Guide to Life with FA — Christina Cordaro
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    • Adaptive training
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    • Boxing cardio

Creating structure and support in FA care

More videos

Informed communication

Whole-body FA care

Trusting your doctors

Rigid thinking

Personalized care

Taking time

Staying proactive

Calm in trials

Treatment fatique

Constant communication

Patient autonomy

See more videos

Christina Cordaro, who lives in Pennsylvania, was diagnosed with Friedreich’s ataxia (FA) in 2011 at the age of 21. She shares how small habits and steady support help her navigate life with FA.

Transcript

So with medicine, I set a reminder on my phone every day to take it at a certain time.

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I also go to physical therapy once a week, so having the support from my family, people close to me, and my husband — just being there to physically take me — really helps.

Having the mindset of knowing how these things are going to help me moving forward and in the future is very important.

More videos

Improving FA care compliance via mindset shifts and tools
Trusting doctors’ expertise in FA treatment decision-making
Obtaining a deeper understanding of FA treatments
Self-advocating to find an FA regimen that works
See more videos

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This site is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

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