Hayden Howard, who lives in Ohio, was diagnosed with Friedreich’s ataxia (FA) in 2014 at the age of 11. She shares how overlooking FA’s effects on the whole body can lead to challenges in treatment and understanding from healthcare professionals.
Transcript
I think that a lot of healthcare professionals look into the general base of FA. A lot of people see it as being similar to MS.
They just see the muscle loss, but they don’t necessarily understand the full neurological conditions.
Most of us have a heart condition, and you really have to watch that when it comes to taking certain drugs and medications.
