Start strong, stay steady:
FA treatment regimen tips
Caring for FA symptoms in all parts of the body
Hayden Howard, who lives in Ohio, was diagnosed with Friedreich’s ataxia (FA) in 2014 at the age of 11. She…
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Promoting informed communication in FA care
Liam Kruesi, who lives in Manalapan, New Jersey, was diagnosed with Friedreich’s ataxia (FA) in 2014. He shares why being…
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Fostering trust in FA doctor relationships
Jonathan Strober, MD, a pediatric neuromuscular specialist based in San Francisco, shares his perspective on the importance of building trust…
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Creating structure and support in FA care
Christina Cordaro, who lives in Pennsylvania, was diagnosed with Friedreich’s ataxia (FA) in 2011 at the age of 21. She…
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Obtaining a deeper understanding of FA treatments
Liam Kruesi shares about the need to understand how FA treatments' actually work, scientifically.
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Trusting doctors’ expertise in FA treatment decision-making
Hayden Howard shares the importance of humility when discussing FA treatment strategies.
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Self-advocating to find an FA regimen that works
Christina Cordaro shares about the need to be firm in creating a treatment plan that fits realistically into your lifestyle.
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