Start strong, stay steady:
FA treatment regimen tips
Taking time with treatment decisions in FA
Jonathan Strober, MD, a pediatric neuromuscular specialist based in San Francisco, shares his perspective on why it’s important not to…
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Staying positive and proactive while living with FA
Hayden Howard, who lives in Ohio, was diagnosed with Friedreich’s ataxia (FA) in 2014 at the age of 11. She…
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Taking time with treatment decisions in FA
Jonathan Strober, MD, a pediatric neuromuscular specialist based in San Francisco, shares his perspective on why it’s important not to…
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Rethinking one-size-fits-all care in FA
Christina Cordaro, who lives in Pennsylvania, was diagnosed with Friedreich’s ataxia (FA) in 2011 at the age of 21. She…
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Challenging rigid thinking in FA treatment
Liam Kruesi, who lives in Manalapan, New Jersey, was diagnosed with Friedreich’s ataxia (FA) in 2014. He explains how strong…
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Fostering trust in FA doctor relationships
Jonathan Strober, MD, a pediatric neuromuscular specialist based in San Francisco, shares his perspective on the importance of building trust…
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Caring for FA symptoms in all parts of the body
Hayden Howard, who lives in Ohio, was diagnosed with Friedreich’s ataxia (FA) in 2014 at the age of 11. She…
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Promoting informed communication in FA care
Liam Kruesi, who lives in Manalapan, New Jersey, was diagnosed with Friedreich’s ataxia (FA) in 2014. He shares why being…
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Creating structure and support in FA care
Christina Cordaro, who lives in Pennsylvania, was diagnosed with Friedreich’s ataxia (FA) in 2011 at the age of 21. She…
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Improving FA care compliance via mindset shifts and tools
Jonathan Strober, MD, shares small tools that make a big difference in FA treatment routines.
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Trusting doctors’ expertise in FA treatment decision-making
Hayden Howard shares the importance of humility when discussing FA treatment strategies.
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Obtaining a deeper understanding of FA treatments
Liam Kruesi shares about the need to understand how FA treatments' actually work, scientifically.
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Self-advocating to find an FA regimen that works
Christina Cordaro shares about the need to be firm in creating a treatment plan that fits realistically into your lifestyle.
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