Friedreich’s Ataxia News Home

Recent Posts

• ‘We’re All in This Together’
• Partnership Aims to Lower Out-of-Pocket Costs for Rare Disease Meds
• What My Recumbent Trike Means To Me
• EndFA’s Mobile App Aims to Unite FA Community, ‘Power the Cure’
• Do People Want to Hang Out With Progressive Disease Patients?
• Nominations Open for 2022 Eurordis Black Pearl Awards
• Study Will Test Using Calcitriol to Boost Frataxin
• A Letter to My Newly Diagnosed Self
• Finding Grace in Relatable Stories From My Community
• Deciding to Conserve Energy Rather Than Embracing the Moment Is Challenging