Forum Replies Created

  • TommyD

    Member
    October 25, 2023 at 10:54 am in reply to: Skyclarys Oct 2023

    My advice fight every issue as a single issue. I believe they try to overwhelm you and frustrate you to the point of giving up. Have you taken a “ modified Friedreichs ataxia rating scale” test. Once I took that test express scripts ran out of excuses. The test is pretty involved given by neurologist and you must score 20 or greater. If you haven’t taken it I would definitely ask your doctor. 2 days after test I was approved.

  • TommyD

    Member
    October 24, 2023 at 2:40 pm in reply to: Skyclarys Oct 2023

    I’m sorry to hear of your struggles. I had express scripts as my pharmacy and to say it nicely it was painful to get medication approved. I went thru 5 denials to many phone calls to remember many trips to NYC for additional tests but finally was approved. The staff at Columbia Presbyterian were instrumental in getting it approved. The key to approval is a very persistent doctor. That being said it still took 3 months dozens of calls and much documentation. I called reata reach, express scripts, and Columbia 2-3X a week for months although it sounds crazy that’s what it took. Best of luck