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Robert Rhodes replied to the topic More Protein- Good or Bad for FA? in the forum Living with FA 1 year, 8 months ago
Agreed with Egan as well.
I have been using GNC’s brand of mass gainer for about a year and a half. (I’m underweight, if you can believe that.)
With a rigorous job and additional exercise, I’ve gained a noticeable amount of muscle in my torso and arms.It is equally important to adjust the rest of your diet. I’ve eliminated all dessert and…[Read more]
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Robert Rhodes replied to the topic Birthday's with FA in the forum Living with FA 1 year, 8 months ago
Happy Birthday, Frankie! (Belated or not.)
I passed my 36th birthday several weeks ago.That being said, don’t allow yourself to believe that the best days don’t lie ahead!
Friedreich’s Ataxia can take away your physical abilities – but it doesn’t have to take your joy too!Thank you for the articles that you have written and will write!
You…[Read more] -
Brian Rhodes and
Robert Rhodes are now friends 1 year, 8 months ago
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Robert Rhodes replied to the topic Reason to Keep Going in the forum Living with FA 1 year, 9 months ago
Wonder is part of it. We are all bound by a medical condition that is rare. There are drawbacks, of course – but there are also unique advantages and experiences if we choose to see past the rough times. It is our strength and curiosity to see what lies around each corner that inspires others that don’t have FA.
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Robert Rhodes replied to the topic Reason to Keep Going in the forum Living with FA 1 year, 9 months ago
I want to see where this journey is heading. My life has gained significant momentum at this point, and I want to see how certain things will play out.
Giving up or, at worst, committing suicide would not solve anything or bring closure any faster. Neither would it be inspirational to others – those affected by FA and those that aren’t.
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Robert Rhodes replied to the topic Needing structure in life in the forum Living with FA 1 year, 9 months ago
In my opinion, structure is a good thing regardless of medical conditions and/or physical ability.
For myself personally, I can work alone or with a group of people. It all depends on the task, time constraints, budget (if applicable), etc.
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Robert Rhodes replied to the topic Night Owl or Early Bird? in the forum Living with FA 2 years, 1 month ago
Early bird. I wake up at 5:30 AM local time, Monday through Friday. I still work full time with about a 20-minute commute both direction.
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Robert Rhodes replied to the topic Awkward Questions from Family/Friends in the forum Relationships & FA 2 years, 1 month ago
The most awkward exchange that I’ve had so far is teaching my cardiologist about FA.
It feels a bit weird when the patient has to teach the doctor about a medical condition.
Even more peculiar when the doctor acts both grateful and insulted that you know more about it than he does.(My first ataxia symptom was congestive heart failure on both…[Read more]
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Robert Rhodes replied to the topic Valentines Day in the forum Living with FA 2 years, 1 month ago
I agree with Jesus Rodriguez’s response. Love requires the other 364 days too. It should not be defined by a single officially recognized holiday or by whatever materialism the celebration promotes. February 14th is just another day on the calendar. (By the way, I’m single too – but it isn’t necessarily a bad thing.)
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Robert Rhodes replied to the topic Honesty is the Best Policy on Social Media in the forum Living with FA 2 years, 1 month ago
I don’t really devote as much time or emphasis to social media as I did in college. When I do post something it is usually to promote a positive mindset or something to make you think. I present Friedreich’s Ataxia posts in the same way. As an aside, I’m only on Facebook. Don’t have time for Twitter – and not photogenic enough for…[Read more]
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Robert Rhodes replied to the topic Being Diagnosed with Friedreich's Ataxia Made Me Doubt God in the forum Living with FA 2 years, 2 months ago
I believe in God fully without question.
Friedreich’s Ataxia is temporary and bound to this life. To allow it to paralyze hope for eternity would be a tragedy that I couldn’t fathom. To me, it is a physical problem. Nothing more. It is an enemy foot soldier (and thief) – not a giant.
That being said, I know God has a plan to reveal His glory…[Read more]
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Robert Rhodes became a registered member 2 years, 2 months ago
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Hey Robert,
Thanks for joining the FA Forums! I’m grateful that you signed up, because one of the most difficult part of FA to deal with is how rare it is — not many people seem to understand! So you are helping us create a place where people affected by FA can share advice and information directly with one another. You’re an important part of…[Read more] -
HI, there Robert! Thank you for signing up and welcome to the FA forum!
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Hi Robert! Thank you for signing up and welcome to the FA forum!
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Thank you! And thank you for the advice! It’s definitely refreshing to hear from someone who has been with FA for longer. I appreciate you!