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Brian Rhodes started the topic Whill Model Ci2 & Model Fi in the forum Assistive Device Usage 22 hours, 13 minutes ago
Hey all:
I just wanted to pass on strong praise of Whill powerchairs Model Ci2 & Fi. I have FA and use the Ci2 90% of the time indoors and out.
Both models have Pros & Cons and little quirks, but online feedback is hard to find for either, so I wanted to make sure to give y’all my contact if you are considering either or have questions.
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Brian Rhodes replied to the topic Handwriting and FA in the forum Living with FA 2 years, 6 months ago
I probably don’t have the emotional sentiment tied to handwriting – probably because it has always been terrible even before FA made it worse. 🙂
But I certainly understand the feeling of loss.
I am so dadgum impatient, even typing is a major hassle for some days. I’ve used voice-to-text transcription software with pretty good results.…[Read more]
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Trevor and
Brian Rhodes are now friends 2 years, 7 months ago
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Brian Rhodes replied to the topic Avocado debate in the forum Living with FA 2 years, 9 months ago
Man, if I could grow those suckers I’d have an orchard of those trees. And I’d always have guacamole.
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Brian Rhodes replied to the topic Married life in the forum Relationships & FA 2 years, 9 months ago
I was married and had one kid before being diagnosed. I have had two other kids since.
FA is a huge bummer, and frequent obstacle of normal family activities, but my wife and kids love me. I am very grateful for them. As an obviously ‘not normal’ dad and spouse, they really do not seem to care as much as I think they would.
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Brian Rhodes replied to the topic This is My Season for Rest and Rejuvenation in the forum Living with FA 3 years ago
I get it, the concept of proper rest and mindset is great. I especially like the ‘Whether you are resting or “doing,” allow yourself to be fully engaged in that moment or process’ quote.
But I’ll counter this by suggesting many of us, using the ‘It’s my season of rest’ is a mental excuse to ‘give up’ for a period. Some people find the…[Read more]
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Brian Rhodes and
Robert Rhodes are now friends 3 years ago
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Brian Rhodes replied to the topic Life with FA is Tough but I Won't Give Up! in the forum Living with FA 3 years ago
This is an A+ article. Good job to the author.
In the scope of the ‘onslaught of progression’, I find stacking my agenda with lots of smaller, short term goals that are potentially achievable is a good defense against going too far down the pit of misery.
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Brian Rhodes replied to the topic Beaches Are Not For Me in the forum Living with FA 3 years, 1 month ago
Man, y’all should go to Texas beaches. There, sandy beaches have the consistency of wet concrete.
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Brian Rhodes replied to the topic Is Uber/Lyft Viable For Those With FA? in the forum Living with FA 3 years, 1 month ago
ha! I assure you, if it’s cool, I will make it uncool once they find out I’m using it…
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Brian Rhodes replied to the topic Is Uber/Lyft Viable For Those With FA? in the forum Living with FA 3 years, 2 months ago
The drivers are typically pretty understanding. I’ve not gotten sideways with a driver on account of my FA, but a few due to other reasons (like being crazy drivers!:) )
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Brian Rhodes replied to the topic Is Uber/Lyft Viable For Those With FA? in the forum Living with FA 3 years, 2 months ago
I’ve used Uber and even Uber XL maybe 30 times in various cities. Me along with 3 – 7 others (coworkers) is common.
With Uber, I’ve never noticed a ‘disabled’ flag of any sort, which is a bummer.But in those ~30 calls, I’ve not had one showstopping experience. Little stuff, like telling the driver you can’t really be dropped off across the…[Read more]
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Brian Rhodes replied to the topic Advice For Newly Diagnosed in the forum Living with FA 3 years, 2 months ago
Enjoy each day for what you can do. Today is a great day to be alive.
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Brian Rhodes replied to the topic Happy birthday Jesus Rodriguez in the forum Living with FA 3 years, 3 months ago
Happy birthday!
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Brian Rhodes replied to the topic Going back to work in the forum Living with FA 3 years, 3 months ago
I work more than full-time for a small business. For me, working helps me not dwell on FA/me/and what I am losing or have lost.
I never feel a total grasp on my situation, and having work goals and deadlines has been very valuable in shrugging off self pity.
I’m not going to lie: the fact I pull paychecks without financially dependent on…[Read more]
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I love your outlook Brian.
And I love this part of what you said, so I want to emphasize it:
BEING UNABLE TO WORK DOS NOT MAKE YOUR VALUE ANY LESS; IN FACT, YOU ARE STRONGER THAN MOST FOR YOUR ENDURANCE.
Thanks for the reply man.
Do you have any tips that help you conquer any challenges FA brings with work? Like in typing, handwriting, maneuvering…[Read more] -
Love this! Thank you for your perspective!
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Brian Rhodes started the topic Best Tips For 'Knowing Your Limits'? in the forum Living with FA 3 years, 4 months ago
Hello all!
I’m a 39 year old male diagnosed with Type 1 Diabetes when I was 18 (in 1998). DX’d with FA in 2009.
I am still pretty mobile, using a wheeled walker, and at present a wheelchair. I’ve got lots of kids and a great wife who like to keep life active.
I am in the chair because I recently fell and messed up my ankle and bummed up the…[Read more]
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Welcome Brian! I really appreciate that you linked the terms ‘pride’ and ‘vanity.’ I know how true that is!
As far as limits, when I was young and faced rapid progression, I chose to be fearful of the future. So instead of focusing on what I still could do, like drive or walk, I lived in constant fear that one day I wouldn’t be able to do either,…[Read more]
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Brian Rhodes became a registered member 3 years, 4 months ago
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Hey Brian,
Thanks for joining the FA Forums! I’m grateful that you signed up, because one of the most difficult part of FA to deal with is how rare it is — not many people seem to understand! So you are helping us create a place where people affected by FA can share advice and information directly with one another. You’re an important part of ou…[Read more] -
Hey Brian! Thank you for signing up and welcome to the FA forum!
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Brian Rhodes's profile was updated 3 years, 4 months ago