Paul
Forum Replies Created
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Is there any way to read what Dr. Lynch wrote on the subject? Is anyone planning to take this before it is tested on a human FA model?
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No I won’t continue online. I have to meet women in real life to begin with from now on. I feel like it is important that I meet them in person from the start. That way I know sooner whether or not we click on a human, emotional and conversational level. No time wasted on expectations and phony judgments.
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Personally I haven’t found anything lasting from online dating but I think that is a mixture of the girls in my area not being appealing to me and me immediately not being appealing to them. There are certain societal and chivalry standards the a man with FA simply can’t deliver and some women find it hard to accept that into their lives. They see us in a chair and they swipe left with the worst case scenario in mind. Though this is just my estimation. But the hardest thing I’ve had to come to terms with is that whether or not we include a picture of us in a wheelchair, we aren’t a paraplegic. There is often a hell of a lot more baggage to our disability. I’ve met people that are adaptable to the speech difficulties and reversed gender roles but I’ve also met quite a few people that couldn’t get on board.
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I know it is soon but have they noticed anything? I thought I read about frataxin increase over 90 or so hours? I mean I know you wouldnt start walking but maybe increase energy or difference in motor skills?
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Nice, well I felt like that read promising. This will at least be a blueprint for a treatment. I feel changes are coming in the next few years!