Forum Replies Created

  • Natalieprice

    Member
    February 5, 2019 at 12:00 pm in reply to: Medication

    It’s just heart breaking , my lil boy been diagnosed a year now he was 7 when we found out his spine has no curved to 51 degrees, we have an appointment tomorrow to find out if he need spinal rods 😢 x

  • Natalieprice

    Member
    February 5, 2019 at 3:14 am in reply to: Age of Diagnosis

    My son was 7 when he was diagnosed with FA . He was diagnosed at 5 with scoliosis. And also 7 with cardiomyopathy x

  • Natalieprice

    Member
    February 5, 2019 at 3:12 am in reply to: Medication

    Hi jaq thank you for replying!! Can I ask how old your daughter is please

  • Natalieprice

    Member
    January 28, 2019 at 4:29 pm in reply to: Medication

    Thanks for replying ,much appreciated 👍🏽