[Matthew Lafleur]

Hey! The FA Group on Facebook isn’t affiliated with BioNews but that is really weird. What is the name of the group? If I know any Admins, I will find out for you.

[Matthew Lafleur]

I feel this so much, Victoria. Even though our circumstances aren’t exactly the same, we both are diagnosed with FA so your frustration is incredibly familiar to me. I think that connection is what keeps me going. For a long time, it seemed like my FA was only my problem. I wasn’t in contact with many others, diagnosed with the same disorder. That is one of the beautiful things about social media. Suddenly, I am able to connect to others with SA all over the world and it seems that I’m not as alone as I thought. So that is what I encourage you to do. The progression of FA sucks entirely. But I have found that it’s a lot easier to deal with when you are connected to others in the same boat. So I encourage you to be a part of things like the forums over here. There are also plenty of groups across social media, especially on Facebook. And lastly, I would encourage you to become a part of FARA at curefa.org . Feeling in solidarity doesn’t do anything to the symptoms that we have to face, but the solidarity makes us feel a lot better. We are never alone! Please reach out to me on here if you ever need anything!