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Nickname

jessie-beatty

What best describes you?

Patient

Short Bio

I was diagnosed with FA just a few months ago.  I have struggled with ataxia since I was 6, we expected FA but genetic test kept coming back normal. When my cardiologist found the thickening in my left ventricle I knew I had FA.  Its been hard but I am so hopeful a drug will become available soon.

How long have you or the person that you are caring for had FA?

4 years

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