[Jaq]

Fingers crossed this goes through quickly. I Am worried of the timeframes for this to be available in the UK which is where we live. Especially with all the Brexit chaos that’s ongoing, as that could really impact on the good work being done for these trials across Europe. But if I have to fly to America and pay for this for my daughter then it’s definitely something I would do.
Let’s hope this is available sooner rather than later and that some of the other good work ongoing in trials also follows on with great results.
It’s nice to have some hope xxx

[Jaq]

Christina that’s amazing, I bet it was very emotional being there for the announcement.
It really does give hope!
I am unsure of the whole process, I seen an article last year to say it was recruiting for the Moxie Study and I did enquire for my daughter but had no response, but I thought it was a phase 2. Any idea on what the next steps are? If it’s gone for approval will it still require more trials or have they all completed now? I really hope the approval process is something that is completed in not too distant future as that would be so amazing xx

[Jaq]

Hi Natalie, she is 17 now but was diagnosed 3 years ago. We initially thought she just had scoliosis, but at the same time her balance seem to deteriorate and when we questioned things they did some more tests and diagnosed FA. So it was devastating as prior to this she had been healthy and showed no signs of any problems. How old was your son when he was diagnosed? Was it recent?

[Jaq]

Hi Natalie, we also live in Liverpool and my daughter also had scoliosis and was diagnosed with FA and was given Vitamin E and Q10, we were told there was some benefit shown from smaller studies so opted for this.