[HECTOR VALLE]

HECTOR VALLE

MEXICAN, BUT SPANISH BLOOD

58 YEARS OLD

[HECTOR VALLE]

Dear Friends,
My first symptoms started  in 2000, when I was 36 years old, and were looking for different doctors, because nobody knew what was happening, I was walking like I was drunk.

Then, in 2004, when I was 40, I went to Boston, because my neurologist was doing a full year on movement disorders and his professor, Dr. Brown studied me for a week and finally I came back to Mexico with nothing apparently, but In February 2005 received a letter from Dr. Brown with my diagnosis from AthenaDiagnosis, showing  891 and 236 repetitions showing my FRDA, or Friedreich Ataxia.

Since then, 18  years ago, I started deteriorating, but working very hard, both in my job and rehabilitation, i went through a 3 wheel waker, then a four wheel waker, then a scooter and today I am 58 and still come to my private office, but I have a chauffer to help me. I depend on my scooters and wheelchair, so you may understand I am desperate for medicine. I want to start as soon as possible, and will let you know how am I doing. I got the DMF, and will start whith the cocktail  (DMF + RESVERATOL) on Augsy 1